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Fund raiser in planning stage for RCDP research, awareness

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Their mother, Marsha Carson, said as far as she knows, Jacob and Abbagale are the only two children in Tennessee to have been diagnosed with this rare disorder. There are than 50 reported cases in the U.S. She is letter carrier with the local post office. The father is Randy Carson who works with Wilson Emergency Management Agency.

Carson called The Wilson Post Friday to discuss the planned fund raiser and to begin to get the word out about RCDP.

“He has his angel wings,” she said of Jacob. His funeral was June 22.

A website has been set up that explains RCDP. The website is www.rhizokids.com. Essentially, RCDP is a genetic disorder that is characterized by, according to the website, a shortening of the humerus and femur bones, coronal clefts of the vertebral bodies, cataracts, lower than normal birth weight, length and head circumference, a growth deficiency, a mental deficiency, seizures, calcium deposits at the joints; stiff, painful joints (not true for every child), recurrent respiratory tract infections and aspiration. Some children who have RCDP have heart complications and some have hearing loss, neither of which is necessarily related to the genetic disorder.

Most research is being done on RCDP type 1. There are two other types as well, the website said.

There is quite of information on the website, and it also links you to other websites concerning the condition.

You can also learn more by visiting www.caringbridge.org. Type in the name jacobcarson and then abbagalecarson for more information.

Check upcoming editions of The Post or visit online at www.wilsonpost.com for more information about the upcoming fund raiser and performance by Burns. 

 

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